Welcome to my Guest House

Titled after Rumi’s famous poem, “The Guest House,” this site houses my writings and talks inspired by my spiritual awakening through parenting a son with neurological impairment. Though my human guest house is unique, its guests are universal. May you be touched by a familiar feeling, inspired by a new perspective or uplifted by an unexpected delight. Welcome.

 
I live in Colorado, near the foothills of the Rocky Mountains, with my middle son, David, who is diagnosed with Autism Spectrum Disorder and Lennox-Gastaut Syndrome (LGS). LGS is a rare epilepsy disorder resulting in uncontrolled seizures, neurological impairment and typically leads to life-long disability.

The challenges of living with and caring for David pushed me onto a path of existential inquiry and spiritual seeking. I have devotedly followed this path for nearly two decades, soaking up the teachings of saints and sages, and have come to know their truth.

David’s influence on my life and awakening has been profound. The lessons of patience, acceptance, compassion, and levity are some of the greatest gifts I have received from being on this journey with him. I am honored to share these and other treasures with you in the pages of this site.

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one,onethousand...

My sister, Debe Arlook, an award-winning photographic artist, and I have collaborated in creating "one, one thousand…" a collection of photos and narrative revealing intimate moments of life with my son who is diagnosed with autism and Lennox-Gastaut Syndrome.

one, one thousand... is on display at the Fulginiti Pavilion, University of Colorado Anschutz Medical Campus through February 13, 2023 Click here for event details.

I seem to swim in the world of the unknown, facing constant challenges and temptations, not knowing where to find my footing or answers...

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For a long time I wanted to get away and live in an ashram. I imagined a quiet reprieve from the stresses of David’s care...

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David spends much of the day sitting on the couch, legs crossed at the knees, hands in his lap, with a calm, contemplative air about him...

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In the dark of night, I rush through the hallway to the bedroom next to mine. I can hear my son’s rapid breath and the gurgle of saliva pooling in his mouth...

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When I take hold of your son’s body and brain, it is best that you remain calm...

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I felt the glow of divinity this morning as I scrubbed my son’s ankles and toes, as I ran the washcloth...

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Speaking

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Life Coaching/Spiritual Guidance

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Please help find a cure for Lennox-Gastaut Syndrome